We Need Your Story

We know that those type of insurance issues are very important to document, and everyone has a story to tell! In 2017, a United States Senator shared that the reason be became so passionate about a ban on lifetime limits was due in part to repeatedly hearing the story of a bleeding disorders patient. Use our Community Chronicles story bank to share why having access solid and consistent health insurance coverage is important to you.

We also want to hear other ways that you advocate on behalf of the bleeding disorders community. Use these questions as thought-starters to help make your voice heard. Please share with us your stories of how you are helping make a change for our community!

• We need to keep the ban on annual and lifetime limits because…

• A ban on annual and lifetime limits is thus a critical protection for bleeding disorders patients against losing

their insurance due to such caps. We need to keep coverage for children up to 26 years old be-cause…

• Insurance companies must not be allowed to discrim-inate against people with pre-existing conditions be-cause…

• We need reasonable limits on maximum out-of-pocket costs because…

• What does the Children's Health Insurance Plan (CHIP) mean to you?

• How do you raise awareness for bleeding disorders?

• How do you advocate with your medical providers?

• As a woman/man with a bleeding disorder, I advocate because....

• Camp changed my life by....

• At school or college, I advocate for myself or my child by…

• As a bleeding disorders patient, access to Medicaid is critical because...

• As a bleeding disorders patient, access to Medicare is critical because...

• What I wish I had known about becoming an adult with a bleeding disoder is...

• When faced with an issue in the workplace, I advocated by...

• As an inhibitor patient or caregive, my biggest challenge ares...

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If you experience any problems or have questions,
please call our office at 1-800-230-9797 or 202-675-6984.
If you experience any problems or have questions,
please call our office at: 1-800-230-9797 or 202-675-6984.