HFA is excited to announce our second annual Young Adult Advocacy Summit! This event will take place virtually Tuesday, June 8 - Friday, August 6, 2021. HFA will bring together young adults ages 18-30 years old with bleeding disorders for the eight week advocacy summit. Participants will develop advocacy, coalition building, and leadership skills through interactive training with experts in policy, advocacy, and communications.
Activities will include:
- Intensive advocacy training on how policy issues affect the patient community at-large, including people with bleeding disorders
- Intensive communications training about how the story of the bleeding disorders community fits in the broader patient narrative
- Coalition building training
- State and local advocacy training
- Learning from other young adults with chronic disorders about the challenges they face every day
- Building early networks across multiple patient advocacy groups to foster activities at a local level
- Virtual Congressional Hill meetings to practice skills
- And much more!
IMPORTANT DETAILS ABOUT HFA’S YOUNG ADULT ADVOCACY SUMMIT
Interested participants are required to complete a short application for HFA to better understand your interest in the Summit. Please note: submitting an application for the Young Adult Advocacy Summit is not guaranteed acceptance to the program, as we have limited space available.
For more information, contact Kimberly Ramseur, Senior Manager, Policy & Advocacy, firstname.lastname@example.org.
Hemophilia Federation of America is a national 501(c)(3) organization consisting of more than 50 member organizations and numerous individual members who offer assistance and grassroots advocacy education on behalf of the bleeding disorders community. Incorporated in 1994, the HFA provides programs and services to improve the quality of life for persons with hemophilia, von Willebrand disease (VWD) and other rare bleeding disorders.
For more information, visit our website at www.hemophiliafed.org.